There are SEVERAL ways that you can become an advocate.
The Sickle Cell Community Consortium (SC3)
- SC3 is a network of sickle cell independent patient care advocates (IPCA), community based organizations (CBO), junior-CBO's, and community partners. This year, SC3 has gained more than 10 international partners stemming from Zambia, Australia, Kenya, Uganda, and so many more places. You can sign up to be a partner, credential and be a part of an amazing network. Partnership includes mini-grants for events in your area and scholarships to in-person events.
Warrior University (Warrior U)
- Warrior U has tons of classes to gain more information on sickle cell, curative therapies, how to build your advocacy resume, how to help build your community-based organizations and so much more. This program is for ANYONE in the sickle cell community whether you are the one living with the disease or you are the child/sibling/parent caregiver.
Sick Cells (sickcells.org)
- Sick Cells is a sickle cell advocacy organization that focuses on political and legislative advocacy. You can sign up to be an ambassador for your state while staying up-to-date on new bills, initiatives, events, and how to talk with your community representatives.
Sickle Cell Medical Advocacy (SCMA) (sicklecellmedicaladvocacy.org)
- SCMA teaches the sickle cell community how to advocate from a medical perspective. Dr. Simone Uwan is a doctor living with sickle cell disease. She shares her knowledge, insight, and expertise on navigating the emergency room and hospital admissions when you need some help receiving proper treatment. This course is open to sickle Cell Warriors, their caregivers, community health workers, and so many more.